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We only sleep because of a hefty dose of melatonin (like it’s enough to knock out a horse). I remember the no sleep YEARS. I wouldn’t wish it on anyone. I see you, Adrian! I call it perpetual toddlerhood here.
- Some days it feels like it will never end, but other days I see tremendous progress. It’s hard and I wish people would embrace the Brene Brown mentality of being brave and owning our story…the good, the bad, and the ugly. I chose to write a book about ours…the jury’s out whether it will be well-received or not.
- We aren’t supposed to talk about how it’s hard. It’s difficult. How we make 5 different calls to Medicaid to get one email so we can ask a question. How we are afraid about the future for our kids. Instead we smile and tell everyone it’s okay. That we’re okay. That it’s going to be fan-damn-tastic.
- As somebody who is a few years ahead of you in this game called Life with Autism, I’m going to tell you something hard. Sometimes, it’s okay to hand over the iPad. We have fought many many battles in the middle of the night while the world sleeps and on the nights that I feel I can’t go on and I have nothing left to give and I want the rest of the family to rest, sometimes I hand over the iPad.
And I sleep while he watches. It’s not ideal. It’s definitely not the way I want to parent, but sometimes rest is more important so this is me giving you permission, one special needs parent to another, to hand over the iPad. Many hugs to you on the hard nights and if you’re ever wondering if you’re alone in the middle of the night, you are not. We’re probably awake here in Raleigh screaming about our ankles hurting.
You just summarized my family’s past 10 years when we welcomed our special person into our lives. When someone asks me about our son’s challenges, I pretty much say “just pick an acronym.” It is exhausting, and I have a tendency to use as much humor as I can to get me through. Definitely not trying to down play the seriousness of the diagnoses, but just trying to keep my sanity through the challenging times. Just when you think you’re treading water, you’re hit by another wave. I appreciated this post because this too is my life.